Privacy and Confidentiality

Privacy and Confidentiality

Question 1.1: Describe how participants privacy will be protected.  For example, conducting research intervention in a private room, only collecting sensitive information about subjects that is pertinent to the research question, etc.

Question 1.2: Describe how participants are identified in the data/records throughout the study:

  • Directly: Research data/records contain direct identifiers such as participant name, or other identifying information
  • Indirectly: Researchers have or collect participant identifiers, but store the identifying information separately from research data/records
  • Anonymous: No identifying information is collected from participants; very few research projects have no identifiers (meaning that the participants are truly anonymous)

Question 1.3: Describe how research documents and data will be stored and protected, to protect against a breach of confidentiality, etc. (ensure this description complies with campus policy*)

Question 1.4: If data will be retained for other research or uses beyond this study, information should be included in the consent form to notify participants.

For more information, see IRB Guidance: Privacy vs. Confidentiality and *Campus Policy on Data Stewardship, Access, and Retention

Keywords:Privacy and Confidentiality   Doc ID:21450
Owner:Casey P.Group:ED/SBS IRB - ARROW Help
Created:2011-11-23 15:03 CDTUpdated:2018-10-16 15:27 CDT
Sites:ED/SBS IRB - ARROW Help, VCRGE and Graduate School
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